Hello

I've decided to try Methotrexate/sulphasalazine, well my consultant suggested them last year but we put it hold because i wanted to have another cycle of ivf, which unfortunately was not successful, was thinking of having another ivf cycle next year but I've got to the stage now where the RA is really getting me down and think its time it was better controlled, plus maybe it would be better for me for when we do decide to have another ivf cycle.

Up until today i have been taking prednisolone, but off to the Dr's today for the blood tests and then to see the Dr to arrange the medication.


Im very nervous about going this, just wondered if anyone can tell me what to expect? Bit worried about side effects also.

Also does anyone else find that when they get stressed or worried about things it effects their RA? I've been worrying alot recently, which i think is why i have trouble sleeping also, i seem to wake up at 3am and cant get back to sleep! Does anyone have any tips, i find i have to sleep in a certain position but isn't really comfortable.

Lou x

hi Lousie,

sorry you are so stressed unfortunately i can't give you comfort about starting any new drug as i feel exactly the same as you.

i lost over half a stone with worry when i had to start Methotrexate in June and i too will be having another drug added i think when i got for review end of the month.

i know i will have to do it as i don't want this awful RA to get a hold of me ... i think we have to remember all the drugs are tried and tested and take comfort in that fact.

and if any reactions occur then we stop them.

my sleep isn't good either since being diagnosed i am convinced it has something to do with the Methotrexate although there is no medical evidence of this, as i do manage to get comfy in bed if i sleep a certain way so i know it's not because of any pain.

i would ring your Rheumy Nurse, talk to your GP and the NRAS Helpline who were a fantastic support to me when i was so worried about it and make an informed decision from there. they may also be able to give you a Co-Ordinator for added support to contact.

sorry i can't give you any more support apart from be safe in the knowledge you're not alone with your fears but you don't want the RA to get worse so do your homework.

come back and let us know how you get on,

Suzanne x

Hello Lou

When I was first diagnosed May 08 I started on sulp............. I worked my way up to taking 4 a day. Then after some months it was put up to 6 a day. I started taking MTX last May. Wasn't very happy about it but I knew I needed something extra. I did put up a post to a new member called Alison a few days ago about it. I can honestly say that I have not experienced any side effects at all. Everyone is different in how they react to the meds. They do monitor you well at the hospital as well.

Paula x

Hi and sorry you're so stressed. I also get extremely stressed when starting new drugs. I'm on my third lot and I've kind of got to the stage where I'll take snake oil if I think it'll help.

Don't do the worst thing possible which is research the internet - that's the road to madness and generally grossly inaccurate in most cases. Your best bet is to ask here where you'll get honest, open responses from people who've been taking the drugs; not hearsay evidence or exaggerations.

We're all with ya and it does get easier to take the new ones in time.